Diseases Home > What to Expect With Lung Sarcoidosis

Progression of Lung Sarcoidosis

The course of lung sarcoidosis varies greatly among patients:
 
  • In many people, lung sarcoidosis is mild. The inflammation that causes the granulomas may get better on its own. The granulomas may stop growing or shrink. Symptoms may go away within a few years.
     
  • In some people, the inflammation remains but doesn't get worse. You may also have symptoms or flare-ups that need treatment every now and then.
     
  • In other people, lung sarcoidosis slowly gets worse over the years and can cause permanent lung damage. Although treatment can help, lung sarcoidosis may leave scar tissue in the lungs, which can affect how the lungs work. Lung sarcoidosis treatment usually does not affect scar tissue.
     

Living With Lung Sarcoidosis

If you have lung sarcoidosis, you should take steps to stay healthy. For example:
 
  • Don't smoke
  • Avoid substances like dust and chemicals that can harm your lungs
  • Follow a healthy eating plan, and be as active as you can without straining yourself
  • Consider joining a patient support group that may help you adjust to living with lung sarcoidosis.
     
Your regular doctor may be able to diagnose and treat your lung sarcoidosis, but diagnosis and treatment by a doctor who specializes in lung sarcoidosis is recommended. These specialists are often found at major medical centers. Even if you want to be treated mainly by your regular doctor, you should see a doctor who specializes in lung sarcoidosis at least once. He or she can work with your regular doctor to make sure you have a good treatment plan.
 
(Click Living With Sarcoidosis for more information.)
 
Written by/reviewed by:
Last reviewed by: Arthur Schoenstadt, MD
Last updated/reviewed:
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